On Aug. 24, 2012, my life was forever changed. My husband, Rob, had an ischemic stroke that affected the right side of his brain, leaving him with left-side neglect. While Rob was still in the hospital, I did as much research as I could on strokes—anything I could get my hands on—and found the
Careliving℠ Community site. For me, having an online support group was a complete
lifesaver.
Between going to work during the day, visiting Rob in the evenings and coming home at night, there was no time to go to an actual support group.
Having somewhere to go to vent, ask questions and share victories was truly priceless.
It wasn’t long before my focus shifted from sharing about Rob to reading the other members’ stories and wondering how everyone was doing. The other members have helped me learn what to do (and what not to do!) as a caregiver.
There is a feeling of camaraderie in being able to go to a website in the middle of the night in your darkest moments and share watching your loved one’s struggle with other people who are as tired and heartbroken as you are.
I urge anyone who is caring for a stroke survivor to join Careliving Community. I know sometimes it feels like there is no time, but please trust me when I say you honestly have to find time somewhere to take a little bit of time for you!
Sincerely,
Tami Daniel
Careliving Community member since November 2012
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